Leukaemia

Prudential Ride London 2018 Bloodwise

Time to officially announce our second fundraiser for Bloodwise.  I am riding the Prudential Ride London 2018 on July 29.  This will be my second time riding this fabulous event.  Last year, I followed the action from my bed in Barnet Hospital when I was in for my first spell with infections related to my Hairy Cell Leukaemia.  I followed the action using the official ride app, where I’d configured it to follow my father-in-law, Julian, Tom, my brother-in-law and…

Read More

Bloodwise Tea with the Girls

On bank holiday May 7th MrsQ hosted the first of our fundraisers for Bloodwise “Tea with the Girls! (Not just for Girls).  On what turned out to be the hottest day in London this year so far, we setup the garden with as many tables and chairs as we could find. On the Menu we had:- Carrot Cake – Hummingbird Bakery Rich Chocolate Cake Rhubarb and Custard Cupcakes (with our own homegrown Rhubarb) Raspberry and Coconut Cheesecake (Vegan, gluten and dairy…

Read More

Finished Medication back to normal!

So, earlier this week, after 6 months… I’ve finished taking daily medication as part of my treatment for Hairy Cell Leukaemia.  Another milestone… 26 weeks of daily and weekly meds… here are the numbers.. 3 daily – 546 tablets , plus 4 weekend – 208 tablets I suppose in the grand scheme of things, and the nature of Hairy Cell Leukaemia (being one of the least nasties), I got off lightly, given what I hear others have to endure! In…

Read More

In Remission from Hairy Cell Leukaemia

On Monday 8th January 2018, 176 days after diagnosis, I was declared in remission from Hairy Cell Leukaemia by my consultant. It is quite difficult do describe my emotions on hearing and absorbing those words. Relieved, grateful, thankful .. a time for celebration, well, not quite, it didn’t feel that way. Being mindful as we’ve learned during this process that 1400 (approx) people on daily basis are diagnosed with one of the 130 varieties of blood cancer, celebration of remission…

Read More
Mijas Costa Andalucia Spain

One Hundred Days with Hairy Cell Leukaemia

One Hundred days ago I was diagnosed with Hairy Cell Leukaemia.  100 days… one .. hundred … days… Looking back, at times it seems surreal, almost like flashbacks from a novel I’ve read, film, documentary I’ve seen.. but no.. it was all real. The first 20 days or so were the “worst”.  Reading about experiences of others my “worst” seems insignificant to the suffering of others with “other” blood cancers,  remember we’ve learned that there are 137 types, and HCL…

Read More
Blood Cancer Awareness Month

Hairy Cell Leukaemia Recovery Week 6

An early morning call from the clinic at Chase Farm hospital informing me that I didn’t need to come in for a blood test that day was a great start to the week.  My neutrophils were at 1.33 from the previous week and other vital components all moving the right direction. It was a busy week at work with 2 client visits. Fortunately I was able to travel to both outside rush hour, which for the next couple of weeks…

Read More

Hairy Cell Leukaemia Recovery Week 5

The week started as usual with my trip to the clinic for blood test.  The good news this week was that my neutrophils were up to 1.33 so improving significantly each week.  This was enough for me to decide that I was well enough to work from the office every day, travelling in at lunch time and returning home after rush hour. I’ve also started back practising trumpet on my pTrumpet to get chops back in shape.  With 3 concerts…

Read More

Hairy Cell Leukaemia Recovery Week 4

At last a pretty uneventful week.  Felt more fit and healthy than I have for many weeks.  Monday’s blood tests show that Neutrophils are up to 0.73 which is really good.  I have resumed daily yoga practice (a short 10 minute routine as I build up my strength) and trumpet practice on my pTrumpet. On Friday, I made an escape and went into the office for our monthly review meeting.  It was great to get out and catch up with…

Read More

Hairy Cell Leukaemia Recovery Week 3

A short report this week (… and there was much rejoicing…)  Sunday was pretty chilled, a relaxing breakfast and morning in our sun trap back garden.  Health wise, feeling good after a restful few days after being discharged from hospital.  Nothing much exciting to do as I was “focused on chilling” in preparation for returning to work on Monday.  We did dip into the Royal Marsden Cookbook to make evening meal on Sunday, this time Angela Hartnett’s  Pea and Pancetta…

Read More

Hairy Cell Leukaemia Recovery Week 1 and 2

I had intended for this to be a weekly blog detailing my recovery, but the unpredictability of being neutropenic put play to that.  There is a very fine line between, “I’m doing grand…” and “Eh, temp is up.. time to go to A&E” – 1.5 degrees Celsius. Friday 4th August Waking up in my own bed for the first time in over a week, without having nurses wake you to attach you to a drip, without nurses lying through their…

Read More
Flickr
Social