HCL Relapse 12 Months On

This day last year I started chemotherapy for my relapse of Hairy Cell Leukaemia. It’s hard to believe it’s been 12 months but thankfully, here we are! At the time, my calendar was filled with chemotherapy appointments and blood tests, every two weeks running until end of May, but in our minds, we were taking it one day at a time. Looking forward at the time, all we had to go on was what happened during my initial treatment, neutropenia,…

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Ride London 2023

Ride London 2023 Done

It’s been a couple of weeks since the ride so about time for me to do a write up! In summary, this year it was a very smooth ride, in that I wasn’t held up by any incidents, there were no warnings of thumb tacks on the road, the weather was just right, wasn’t too windy, wasn’t too warm.. just right. I set off from the house shortly after 5am on the morning of the ride. In previous rides, I…

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Ride London 2023 Countdown

6 Month Update

This weekend is more or less the end of the initial 6 month period that I was informed I would be having treatment. Cutting a long story a bit shorter (sorry, I do waffle a bit), I responded well to treatment so didn’t require the 13 or so cycles of treatment that I was expecting in that 6 month period. Since my last blog, I’ve had 2 more cycles, at the beginning and end of April. I had a blood…

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Hairy Cell Treatment Latest Update

Time for an update! It’s been a while 🙂 In my previous post was written just before cycle 4. I went on to have 3 more cycles before my consultant suggested we take a break and do a biopsy to see where we are. Only so much can be analysed from blood results so biopsy it was. I had the results from this a couple of weeks ago, where my consultant informed me I am responding very well to treatment,…

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Cancer Treatment Update

Hairy Cell Leukaemia – Treatment Update

It has been over a month now since my last update, so I thought it was about time to gather my thoughts! Looking back to my first post on this relapse, I was due to start my treatment on November 17th and would be approaching cycle 6 this week, however, this isn’t exactly how things have panned out. The original start date date slipped 2 weeks to December 1st as pharmacy at Lister did not have the chemo drug I…

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HCL Relapse – Treatment Update

I start my treatment for my HCL relapse this Thursday (17th Nov). It seems quite a long time since the initial warning signs were found in my annual check-up in July, but as bizarre as it sounds, it’s good to finally have a start date, because, a start date, means an end date! I am facing 6 months of fortnightly chemotherapy (at the Lister in Stevenage) – where I will be given Pentostation by IV drip. This is a very…

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Wiltshire & New Forest

Another year, another holiday in the UK. We’d planned to go abroad and were looking at Split in Croatia but I couldn’t get travel insurance (more on that below). MrsQ put out a request for recommendations on Facebook and received lots of replies. We chose to do a 2 location trip, with very different accommodation at each! Shepherds Hut Yes, we went “glamping” for 3 nights at a location just outside Tisbury in Wiltshire, a Shepherds Hut with nearby kitchen…

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Ride London - Essex 2022

Ride London – Essex 2022

I am delighted to announce that I will be riding in Ride London – Essex 2022 raising funds for Blood Cancer UK again. This is my 4th time participating in the event and my second time raising funds for Blood Cancer UK having been diagnosed the summer following my first ride. I originally had a place on the pandemic Ride London – Surrey event which would have been on the “traditional course”. This years event sees the ride head out…

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50 in February - Half way

50 in February for Blood Cancer UK – Half Way Report

Happy New Fundraising Year! With this years (as far as I am aware) Ride London not happening, I’ve decided to join Blood Cancer UK on their 50 in February event to open my 2021 fundraising account! The 50 in February event is to run 50 KM or Miles in February, raising funds for the charity, publishing progress on social media channels, etc to get the funds in! According to the Facebook group, there are over 1400 runners from all parts…

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1000 Miles for Blood Cancer UK Done

After 32 days, 31 rides, mainly on Zwift, I’ve completed my challenge! 31 Rides 1005.74 miles covered! 57:35:09 Total Ride Time 36,882 Calories burned! 66,733 Feet of Climbing The final day was the PRL ride on Zwift. 11 laps of the London Loop. Above shows the stats recorded by Zwift App. I can’t quite believe I completed the 100 miles in under 5 hrs which is cool. Yes, I did enjoy a beer or two after the ride, needed to…

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