Leukaemia

1000 Miles for Blood Cancer UK Done

After 32 days, 31 rides, mainly on Zwift, I’ve completed my challenge! 31 Rides 1005.74 miles covered! 57:35:09 Total Ride Time 36,882 Calories burned! 66,733 Feet of Climbing The final day was the PRL ride on Zwift. 11 laps of the London Loop. Above shows the stats recorded by Zwift App. I can’t quite believe I completed the 100 miles in under 5 hrs which is cool. Yes, I did enjoy a beer or two after the ride, needed to…

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One thousand miles for BloodCancer UK

Having signed up for the Prudential Ride London again this year for BloodCancer UK (formerly, Bloodwise), I had started the year with a training program in mind, penciled in a few sportive events (in fact, did the first of the year with UK Cycling Events). Then, Covid… To cut a long story short, the event has been cancelled. This is disappointing for lots of us cyclists, but really devastating for all of those charities that rely on such events (and…

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Ride London 2019

Ride London 2019 Done!

Better late then never but here is my post relating to this years Prudential Ride London which took place on August 4th. I chose to raise funds again this year for the marvellous people at Bloodwise and it was a privilege again to ride in their colours. The ride this year could not have been more different than 2018 in many ways. Firstly, in terms of my preparation and training, I exceeded my training miles this year over 2018 by…

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Prudential Ride London 2019

I will be riding Prudential Ride London again on August 4th 2019 raising funds for Bloodwise. For those of you not familiar with Bloodwise, they fund world-class research into all types of blood cancer. They are also there for blood cancer patients – they support anyone worried about blood cancer with expert information and advice. After 2018’s rain soaked event, I’m sure I’m with every other rider in the 2019 event hoping for better weather (and, of course better times!)…

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Ride London 2018 Done

So, after countless sunny days, many training rides in the heat… it only tipped it down on the day, more or less all day.  It almost but didn’t break my spirit on the day… all I had to do was think back 12 months ago and remind myself that I followed the event from hospital bed, probably receiving blood transfusions that day also.  Crossing the finish line was special.. but not as special as the roar from the support team…

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Prudential Ride London 2018 Bloodwise

Time to officially announce our second fundraiser for Bloodwise.  I am riding the Prudential Ride London 2018 on July 29.  This will be my second time riding this fabulous event.  Last year, I followed the action from my bed in Barnet Hospital when I was in for my first spell with infections related to my Hairy Cell Leukaemia.  I followed the action using the official ride app, where I’d configured it to follow my father-in-law, Julian, Tom, my brother-in-law and…

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Bloodwise Tea with the Girls

On bank holiday May 7th MrsQ hosted the first of our fundraisers for Bloodwise “Tea with the Girls! (Not just for Girls).  On what turned out to be the hottest day in London this year so far, we setup the garden with as many tables and chairs as we could find. On the Menu we had:- Carrot Cake – Hummingbird Bakery Rich Chocolate Cake Rhubarb and Custard Cupcakes (with our own homegrown Rhubarb) Raspberry and Coconut Cheesecake (Vegan, gluten and dairy…

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Finished Medication back to normal!

So, earlier this week, after 6 months… I’ve finished taking daily medication as part of my treatment for Hairy Cell Leukaemia.  Another milestone… 26 weeks of daily and weekly meds… here are the numbers.. 3 daily – 546 tablets , plus 4 weekend – 208 tablets I suppose in the grand scheme of things, and the nature of Hairy Cell Leukaemia (being one of the least nasties), I got off lightly, given what I hear others have to endure! In…

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In Remission from Hairy Cell Leukaemia

On Monday 8th January 2018, 176 days after diagnosis, I was declared in remission from Hairy Cell Leukaemia by my consultant. It is quite difficult do describe my emotions on hearing and absorbing those words. Relieved, grateful, thankful .. a time for celebration, well, not quite, it didn’t feel that way. Being mindful as we’ve learned during this process that 1400 (approx) people on daily basis are diagnosed with one of the 130 varieties of blood cancer, celebration of remission…

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Mijas Costa Andalucia Spain

One Hundred Days with Hairy Cell Leukaemia

One Hundred days ago I was diagnosed with Hairy Cell Leukaemia.  100 days… one .. hundred … days… Looking back, at times it seems surreal, almost like flashbacks from a novel I’ve read, film, documentary I’ve seen.. but no.. it was all real. The first 20 days or so were the “worst”.  Reading about experiences of others my “worst” seems insignificant to the suffering of others with “other” blood cancers,  remember we’ve learned that there are 137 types, and HCL…

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