#leukemia

Mijas Costa Andalucia Spain

One Hundred Days with Hairy Cell Leukaemia

One Hundred days ago I was diagnosed with Hairy Cell Leukaemia.  100 days… one .. hundred … days… Looking back, at times it seems surreal, almost like flashbacks from a novel I’ve read, film, documentary I’ve seen.. but no.. it was all real. The first 20 days or so were the “worst”.  Reading about experiences of others my “worst” seems insignificant to the suffering of others with “other” blood cancers,  remember we’ve learned that there are 137 types, and HCL…

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Hairy Cell Leukaemia Recovery Week 1 and 2

I had intended for this to be a weekly blog detailing my recovery, but the unpredictability of being neutropenic put play to that.  There is a very fine line between, “I’m doing grand…” and “Eh, temp is up.. time to go to A&E” – 1.5 degrees Celsius. Friday 4th August Waking up in my own bed for the first time in over a week, without having nurses wake you to attach you to a drip, without nurses lying through their…

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